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View Full Version : Lack of Attention to Physical Problems in Autism


JoshP
03-27-2004, 10:42 PM
I am often surprised and upset when I hear that a rather serious physical problem of an autistic child is dismissed as ‘just another symptom of the disorder,’ when the problem should be addressed directly. A commonly reported problem is insensitivity to pain. Many, not all, autistic children lack perception to pain. They may fall and then bruise or cut themselves quite seriously, but they exhibit little or no reaction to the injury. I sometimes hear of an autistic child who will place his/her hand on a hot stove, suffer a severe burn, and show no reaction.

When this type of problem is discussed with a pediatrician or another health care provider, in many cases, very little is done to determine what may be happening. The remark commonly given is: “Autistic individuals tend to have a high threshold for pain.” HOWEVER, if this child did not have autism and exhibited insensitivity to normal levels of pain, then this problem would likely be treated as serious; and there would be much concern about treating the problem.

[Insensitivity to pain may be due to elevated levels of endorphins, endogenous opiate-like substances, in the body. One possible source of these endorphins may be from eating food items containing gluten or casein. If the person has a ‘leaky gut’ (i.e., small holes in the intestinal tract), these proteins may slip through the holes and cause a chemical reaction. The chemical configuration of gluten and casein is similar to endorphins.]

Another problem often seen in autistic individuals is chronic diarrhea. Again, many autistic children suffer from this problem. Chronic diarrhea is very uncomfortable, and the child may not be absorbing all of the nutrients from his/her foods. This can affect brain development and, consequently, cognitive processing and behavior. Again, many health care providers simply state that chronic diarrhea is common in autism; and this problem should not be of any concern. [This problem may be due to some type of intestinal tract problem, such as ‘leaky gut,’ yeast overgrowth, low levels of secretin, some type of infection, presence of a virus and/or toxins, such as metals.]

It is quite obvious from the research literature that many autistic individuals have physical health problems. Some physicians are aware of these problems, but many are not. In fact, it is usually the parents who, through their perseverance, learn the best ways to treat their children’s physical problems. Defeat Autism Now! (DAN!), a coalition of clinicians and researchers sponsored by the Autism Research Institute in San Diego, developed a report on understanding and treating many physical symptoms associated with autism. The report is entitled: ‘Biomedical Assessment Options for Children with Autism and Related Problems.’ A copy of the protocol can be purchased from the Autism Research Institute for $25 (address: 4182 Adams Ave., San Diego, CA 92116).


Author
Stephen M. Edelson, Ph.D.
[size=2]Center for the Study of Autism, Salem, Oregon
Copyright Autism.org (http://www.autism.org)[/size]

vettech
07-06-2004, 08:36 AM
My son was stung by a wasp, and never cried. Oh, he was fascinated when his hand blew up, that was it. My son also can not be potty trained due to his cronic diarrreah. The doctors do not seem a bit worried. Now he is going to a feeding clinic for eating disorder. Funny thing is, the doctor there wants him to see an allergist and a GI doctor first. Could someone be starting to get it? Don't want to get my hopes up. He learned potty training a week before his 7th birthday, however the pull ups have to stay on, a blow out gives no warnings! This of course sabotages the potty training. No potty training, no day care. This makes working real hard. Every way I turn it's just another brick wall with this situation.

AutMom
07-06-2004, 03:07 PM
I guess it depends on the doctors, but many of us seem to be finding out our doctors just don't dig deep enough. My son's GI doc prescribed him Prevacid for acid reflux, and told us he'd be on it the rest of his life....:rolleyes:

So, I had testing done through The Great Plains Lab and found indications of yeast overgrowth, vitamin deficiencies, impaired detox system, and low seratonin. I also had a peptide test done and found he should not have milk. So now at least I have an idea what supplements he needs and he no longer has milk products.

I had the same tests done for my husband (fibromyalgia). His test indicated similar abnormalities and now we are supplementing what he needs.
The doctors seemed to be clueless about these tests.

vettech
07-09-2004, 12:52 PM
Wow! Did your doctor ok the Great Plains tests? How about insurance, did they approve the tests? What supplements do you find helps? Sorry for all the questions!

AutMom
07-09-2004, 08:09 PM
Yes the doctor did sign for the tests. He is a new young doctor and seems open minded. He didn't know what he'd do with the results so I assured him that GPL would advise us.;)

Since I have an HMO, I had to pay up front and send a claim form to my insurance. I still don't know if they've approved any of it, but it was money well spent anyway. GPL will send you test kits for free.
http://www.greatplainslaboratory.com/home.htm

Both of them have been treated for yeast overgrowth with Grapefruit Seed Extract for a month. Probiotics are ongoing.

Both have different high potency multi-vitamins and additional supplements.

My son is doing very well on Spectrum Complete powder by Kirkman. He also takes E-Complex, Methyl-B12, Flaxseed, C, Reduced L-Glutathione.

My son was very pleased that we did this as he hadn't felt right. I was very pleased to get an idea of what supplements I could give them to try to help them get better. Better than doing nothing.

AutMom
07-24-2004, 09:23 AM
My son was extremely moody at the beginning of the week. He was burping a lot, and complaining about his throat. I thought it might be yeast coming back (he's been off the grapefruit seed extract for over 20 days). So I started the GSE again. Moods leveled off - No more burping or complaining!:)

michel de vos
07-26-2004, 11:11 AM
Hi, my name is Michel and I am a physical therapist. I work in a special ed school in Connecticut and I was introduced to magnet therapy and have found excellent results with it. This company that I am now affiliated with makes a whole bunch of products and what I have found to work with a friend of mine whose child had autism is a sleep system which helps them to sleep better, and also ph balances their body which assists greatly with all functions.
I have some expererience with this so if you are interested let me know.

AutMom
08-21-2004, 10:26 PM
[QUOTE=AutMom]My son was extremely moody at the beginning of the week. He was burping a lot, and complaining about his throat. I thought it might be yeast coming back (he's been off the grapefruit seed extract for over 20 days). So I started the GSE again. Moods leveled off - No more burping or complaining!:)[/QUOTE]
Just to update: We stopped the GSE since I found out it isn't a good idea to take it if you take SSRIs. He's now taking Olive Leaf Extract and we doubled the probiotics to keep yeast under control.

He's doing very well.

AutMom
12-28-2004, 09:01 AM
[QUOTE=vettech]Wow! Did your doctor ok the Great Plains tests? How about insurance, did they approve the tests? What supplements do you find helps? Sorry for all the questions![/QUOTE]
My insurance did reimburse me!

Another update is that since addressing his issues of yeast, milk, vitamins, etc., my son has been off of Prevacid for a few months now!