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View Full Version : Questions about my PDDNOS (right forum?)


Kamex
12-18-2004, 06:12 AM
Hey, a long time ago I came to these forums, and only posted once. For some odd reason, I found myself too shy to post again. I have decided to give it another try.

Specifically what I have is PDDNOS, which, from what I understand, is the same as autism only less severe. In the early years of my life, my condition was much more severe, but it seems to be improving as I get older. At this rate, I estimate I will no longer be autistic by around 30.

But for now, I still have problems. I was wondering if someone could tell me which of these symptoms are elements of the autistic spectrum, and which ones are probably something else.

1. Inability to handle change - 3 years ago, my very favorite game was Chex Quest. It was the very first thing I happily went to install on the new Windows XP computer I got at that time. Upon discovery that Chex Quest, a DOS game, did not run on XP, I totally lost it. I spent hours a day desperatly trying to find ways to bring my precious game back to me for nearly 3 years. In my free time, I made a Chex Quest desktop theme, and hummed the background music of the game all the time until I could no longer remember how it went. I only recently managed to get it to run by duel-booting. I'm 17 now, and I grew out of the game, or was supposed to have grown out of it long before I got XP. In addition to this, my dreams still tend to take place in my old house, which I haven't even seen for at least 10 years.

2. Lack of Maturity - As previously stated, I am 17, but although I do not need to sleep with them anymore, I still have stuffed animals, and am very attached to them. My primary stuffed animal used to be my security blanket, but as he can never be washed again without unraveling in the tub, I can't really go near him anymore unless something really bad happens. I now carry my 14 year old teddy bear around the house, which, believe it or not, is in pretty much mint condition. I need to hold my teddy bear during stressful periods of the day, and it's very difficult to manage even a small misfortune without him. I also cannot suppress crying at petty problems, and I find I get along much better with young kids than people my age. Ever see the movie 13 going on 30? It's like that only I'm 8 going on 17.

3. Some things hurt that shouldn't - Sliminess hurts...a lot. My face hair became very oily when I became a teenager, which doesn't help the situation. By about 4:00pm my face is too greasy to put on my glasses (it stings too much when the clear part touches my nose. Sometimes before I go to bed, I have to take a shower and scrub my face really hard with my fingers and wash my hair several times until they stop hurting to be able to go to sleep. When I wake up in the morning, my face and hair are dripping with grease, and I have to RUN to the shower to get it off because its so painful. About every other night I get woken up from pain on my face and in my hair. I also must take a hand-washing break in the middle of my meals at restaurants because my dirty hands are painful. Sunscreen is horrible to put on, causing me to wince in pain until it dries. As for butter, well, I scream bloody murder if I accidentally get some on the tip of my finger and desperatly try to get it off...

4. Some things don't hurt that should - Sunburns feel uncomfortable, but not painful. One time when I had a really bad one, I creeped my brother out by scraping it really hard with my nails. Scalding heat also does not hurt, in fact, it makes me laugh. One time, I was trying to strain some mac and cheese and a accidentally poured the boiling water on my hand. It felt like I was being tickled. I can stand barefoot on the hot street when all my other friends have to dance like crazy to get accross it if they happen not to have shoes with them.

5. Problems interpreting things - Even if someone is saying something very interesting, I find it very hard to focus on their words. Often I'll space out in these situations, and when I do you can bet I'm still thinking about the actual subject being discussed, just to myself. I find it really hard to interpret a long sentence. I can read it out loud and I understand the individual words in these long sentences, but I can't get overall meaning. In order to understand these I have to take out a piece of paper and use cliches in the English language to convert the sentence to fewer words, and I can then understand the sentence upon rereading it.

AutMom
12-21-2004, 09:32 PM
[QUOTE=Kamex]
1. Inability to handle change - 3 years ago, my very favorite game was Chex Quest. It was the very first thing I happily went to install on the new Windows XP computer I got at that time. Upon discovery that Chex Quest, a DOS game, did not run on XP, I totally lost it. I spent hours a day desperatly trying to find ways to bring my precious game back to me for nearly 3 years. In my free time, I made a Chex Quest desktop theme, and hummed the background music of the game all the time until I could no longer remember how it went. I only recently managed to get it to run by duel-booting. I'm 17 now, and I grew out of the game, or was supposed to have grown out of it long before I got XP. In addition to this, my dreams still tend to take place in my old house, which I haven't even seen for at least 10 years.

.[/QUOTE]
My son also gets attached to certain things and finds it difficult if he no longer has access. He also sometimes wants things from the past that are long gone.

Lucas
12-24-2004, 11:32 AM
Hello Kamex.

I am Autistic and my view on PDD-NOS is the same as Bernard Rimland's; PDD-NOS does not exist as a clinical term, it's what people diagnose when they have no idea what they are talking about, either through ignorance of inexperience.

You are proberley Autistic, don't be fooled by terms that try to dilute that fact. History has some faults in it and most of the myths and misinformation abuat Autism comes from those who should know best.

autimom
01-16-2005, 09:40 AM
I am 30 now don't count on the pdd going away ever, you just find ways to seem more normal

BeccaG
03-18-2005, 05:09 PM
Hi Kamex!

I guess I'd put it as "in the spectrum but even harder to put in a box", maybe?

Anywhere "on the spectrum" there's different levels of severity.

As for getting better: The neurological differences stay the same, but the coping can definitely expand, so they can become less inconvenient, you have more choices on how you manage the disadvantages, and you can increasingly enjoy some of the "traits" as advantages. :cool:

BeccaG
03-18-2005, 05:22 PM
Also:
1. Inability to handle change - yup
2. Lack of Maturity - tough label! definitely need for comfort object not unusual (some folks find more "socially acceptable" substitutes). Cry easily--yep--goes with that high sensitivity thing.
3. Some things hurt that shouldn't - Shouldn't? Don't for most people maybe. Expect to find some soul mates on this stuff here!
4. Some things don't hurt that should - Might or might not be. Should be checked out with Doctor. There is potential for injury so you'd want to be careful with that! Great place for a cognitive coping skill.
5. Problems interpreting things - Definitely.

sharon
03-22-2005, 06:53 PM
Whether PDDNOS or otherwise, Kamex, you have your battles, don't you? I work with people with Autism and consider myself an advocate and a friend.

What struck me most about your posting, believe it or not,was your issue with "slimieness".(sp) With the support of your family/friends and an interested homeopath and/or physician, you may be able to find products that will help you. The sebaceous glands can be a tricky widget in adolescence and beyond. Although you may be viewed by some as hypersensitive, you may simply be repulsed. There is help.

I'd like to suggest that you ARE in control. I am well versed in pointing out the obvious! Find things that make you feel better. I can point you to some if you like.

As far as your other concerns/questions go, with all due respect to those individuals and families working through the hugest hurdles, you seem an articulate and interested young person seeking answers on your own, suffice it to say that you will find them. You need to keep working and to keep looking for ways to make your life work for you. Wouldn't it be great if you found a great, natural shampoo and/or soap that let you get through till morning? Or if you convinced yourself that the things that repulsed/bothered you only served to make you stronger? I'm not being smug, only suggesting one of the tried and true ways I get through things that terrify or repulse me.

Best wishes, Kamex and there is hope!

Butch01
06-28-2005, 09:14 AM
I agree with Lucas, your autistic. Everything that you descrided is pretty much what I whent thru in my younger years. Dont worry about the maturity. you are who you are, nothing more, nothing less. These things will change over time, you just need to let it happen natually, if you try to force your self to change, its only going to cuase you striffe.

P.S. about the stuffed animal thing? I'm 28 and I play with marvel action figures. But I also pay my rent, go to work and handle every other problem that life throws at me. things like this are nothing more than a tool to relive stress, so dont worry about it, you just hang onto your teddy bear as long as you need to, ok?